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autisticadvocacy.org
28 October
2014
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Unfortunately, ASAN’s
position reflects an ignorance of medical reality. While doctors cannot deny a
person from being offered food and water, this should not be conflated with
artificial nutrition and hydration. Medical interventions such as intravenous
fluids cause harm though pain and risk of complications. This harm is justified
when it is outweighed by benefit such as improved long-term wellbeing.
All medical
interventions require informed consent. After consent is given, it can still be
withdrawn. In situations where the patient cannot give consent, the next of kin
becomes the surrogate decision maker, whose wishes must be respected as long as
they are in the patient’s best interests. With Nancy Fitzmaurice’s mother, this
was the case.
For people who are
severely disabled, the risks of intervention increase due to comorbidity,
reduced physiological reserve, and reduced ability to recognise and communicate
problems at an early stage. Conversely, the potential for benefit decreases in
the setting of incurable illness. Thus, the ethical calculus of intervention
shifts towards net harm. In a reality where all must die, there is an ethical
imperative to offer “quality of death” with dignified peace rather than
protracted torture.
While sounding
negative to the medically untrained, "discrimination on the basis of
disability" is a doctor's duty and failure to discriminate is negligence.
(original article
from JYW's wall)

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